Virginia Memory Project: A Stepping Stone Towards Better Brain Health Policies and Resource Allocation

Establishing a dementia registry could aid in directing brain health resources in Virginia

The Virginia Memory Project, a joint initiative between Virginia Commonwealth University and the Virginia Department of Health, is on track to become law. This project aims to document cases of dementia and other neurodegenerative diseases in the state, which will help in the development of public policies that promote brain health and fair distribution of resources.

The project is one of four dementia registries in the country that are supported by the Centers for Disease Control and Prevention under the BOLD Infrastructure for Alzheimer’s Act. Bills have been introduced in Congress to reauthorize the original act passed in 2018.

This registry tracks disease cases and the number of caregivers in Virginia, providing valuable data for policymakers and public health leaders to identify areas with high prevalence of dementia, allocate resources, and develop effective solutions for individuals with cognitive impairment and their caregivers.

LeadingAge Virginia has expressed its support for this legislation as it will gather information about brain health, memory, and caregiving for all adults in Virginia, not limited to those in assisted living facilities. The project has already identified over 700,000 cases of dementia in Virginia and is open for enrollment to anyone aged 18 and above through a confidential online survey. This data will help support the prioritization of resources for people with memory loss and caregivers across the state, benefiting all settings of care.

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